Your United Services Union Executive are all walking to support the Save Our Sons Walk 4 Duchenne taking place on 23 February 2020 and we urge members to join the walk or sponsor our team to help raise funds for this vital cause.
WHAT IS DUCHENNE?
Duchenne muscular dystrophy (DMD) is the most common muscle disease of childhood. One in every 3,500 newborn boys have Duchenne. Very rarely it also affects girls (approximately 1 in 50 million girls). It occurs across all races and cultures.
Symptoms of Duchenne usually appear between ages two and five years and may include difficulty: running, jumping, climbing and rising from the floor, frequent falls, enlarged calf muscles, toe walking and delays in language development. The first muscles affected are those around the hips and upper thigh. Weakness gradually progresses to include all the muscles used for movement (skeletal muscles), the muscles used for breathing and the heart. FIND OUT MORE
The Save Our Sons (SOS) Duchenne Foundation is a not-for-profit charity dedicated to raising critical funds to find a cure for those living with Duchenne muscular dystrophy (Duchenne), whilst also enhancing the quality of life for those living with the condition.
Over the past 11 years SOS have raised over $20 Million, which has been used towards research and programs.
The community Walk 4 Duchenne was created to allow families, friends and members of the community to take part in the 7.9km walk on the 23rd February around Cooks River, starting and ending at Gough Whitlam Park. Immediately following the walk, SOS will be hosting a picnic with food, fun and activities for the entire family.
The community challenge is to walk 7.9km to represent the 79 Exons in the dystrophin gene. Just one mistake in this gene can cause Duchenne muscular dystrophy. The aim of the Walk 4 Duchenne is to raise awareness, unite the community and raise vital funds in our fight for a cure.
SPONSOR A WALKER: